Dr. McClary, one of the excellent physicians from Grand Rounds, called and was able to help me decipher some of the pathology questions that have been driving me nuts for a week and a half. Regarding Grade II Myxoid Chondrosarcoma: Myxoid just describes how some of the cells look. What I have is not the […]
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I mentioned a while ago that I had contacted Dr. Orin Bloch about his research. As I’m going through the pre-surgery documentation to revisit the details now that we know more about what was in there, I thought you might be interested in an edited copy of his response with some relevant thoughts: “Maria, I’m
Back before the surgery, when I was looking for a second opinion about treatment options and researching who the best surgeons in the area would be, Grand Rounds located the very impressive Dr. Manish Aghi to provide me with a second opinion about treatment options and answer some of my questions. I was just reviewing the
Last Friday we met with Dr. Ferriera, the amazing neurosurgeon who handled my craniotomy, to follow up briefly on the post-surgery pathology report. Here’s what he said: it turns out that the tumor is a grade two myxoid chondrosarcoma. He reiterated that he was able to remove approximately 95% of it. He said that the tumor
So, chondrosarcoma is one of several rare cancers. The drawback to having a rare cancer is that there is seldom a lot of research about it. Scientific research in general is often expensive and time-consuming, and few organizations are interested in spending time and money on the unusual stuff. My big questions if this turns out
So, my excellent neuro-oncologist has indicated, depending on the outcome of the surgery, radiation treatment may not be necessary. She shared an article by Almefty (2007), where on page 2465, he says the following: “Radiotherapy has significant risks such as brain necrosis, blindness, demyelination, and radiation-induced tumor or malignant transformation. These risks may be avoided
My neuro-oncologist is Dr. Lynne Taylor, and my neurosurgeon is Dr. Joseph Serrone. At Virginia Mason, doctors get together and review these sorts of cases with a team of people once every other week. Here were the physicians who reviewed my case: Neurosurgery: Farrokh Farrokhi, MD Joseph Serrone, MD Michelle Gilbert, PA-C Kellen Nold, PA-C